It has been a while since our last update. As you can image, we have been extremely busy! Aiden has made good progress but the drug wean is taking longer than expected. This has caused other issues such as vomiting, respiratory difficulties, and makes him very cranky at times. The goal is to have him weaned off the main narcotic in about 5 days, and then they will start to wean his oxygen to a lower level before starting to wean the valium. After that, they will work on his feedings and try to get him to take milk from the bottle. If he does, then we can do a swallow study and get a better idea of what might be causing his feeding issues.
Despite all the hardships, we are very thankful for where we are. Several weeks ago, things took a turn for the worse but thank God, He answered prayers and things have gotten so much better. Aiden’s vitals look good and he has steadily gained weight (just over 11 lbs).
Ethan and Evan continue to do very well. Evan is near 17 lbs. and even 6-9 month size clothes are getting tight on him. Ethan’s face has filled out very well and he is not too far from 15 lbs. Both boys are beginning to “talk” and actually communicate with each other from time to time. They do a pretty good job sleeping through the night and are starting to eat more solid food. Evan will literally lunge at the food and can not wait for the next bite!
Thanks for your continued prayers. Hopefully, the next update will be “the return of Aiden.” If all goes well, he could be home as early as the end of next week…hopefully!
Evan wonders what I’m doing
And so does Ethan
Ethan, you looking for a fight?
He was only playing!
Evan is being bashful
An early mother’s day gift — a 24×53″ canvas portrait of the boys
Ethan loves his toys
The twins just before their “walk”
Evan is so cool with sunglasses
It took Ethan a little longer to get used to glasses
Evan with a pacifier
Fly Evan, fly!
Why does Elmo get to keep his clothes on when we have to take ours off?
The little charmer
He has grown in weight and length
Trapped in his cage…when can he come home?
Aiden can be quite serious at times