First trip away…

Shortly after Aiden & Hannah left for the hospital in Boston, Manish and the twins took a trip to Rochester, NY to visit his parents. This was the twins first trip away from home and they did very well! They thoroughly enjoyed their time with Papa, Grandma, “Oak” (Uncle Sachin) & Aunt Amisha. They have grown so much in the past several weeks and now look like 4-yr olds-such big boys! The pics below are an assortment of the boys playing, at the museum, doing things with family and being silly. All in all, it was a great trip!

Aiden and Hannah are still in Boston. Over the past few weeks, Aiden has had a neural MRI, CT Scan, Gastric Emptying Study, Echocardiogram and various other tests. As always, everything is negative and the CT even shows slight overall improvement (in some aspects) in his lungs from his previous chest CT two years ago. While that is good news and rules out the need for lung biopsies at this point, there has still been no progress in addressing the serious health issues that he is continuing to experience. For the past week and a half, Aiden has been trying several new medications as well as re-trying several drugs that were tried previously, prior to his past couple of surgeries. We will meet with Aiden’s GI doctor this week to come up with a longer-term plan, and also plan to begin weaning the narcotic pain medications this week, which will be challenging, given that he is throwing up so much when the drugs wear off.

Thanks for your continued prayers!

2011_04_002.jpg Racing cars on their new racetrack

2011_04_003.jpg Having a great time harassing Papa

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2011_04_007.jpg Grandma watches on

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2011_04_019.jpg Can’t tell who is having more fun here

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2011_04_036.jpg Amisha and Evan having breakfast

2011_04_038.jpg Oak has fun with the boys

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2011_04_044.jpg Crushed!

2011_04_051.jpg Time to get Amisha

2011_04_055.jpg Now they turn on eachother

2011_04_060.jpg At the museum

2011_04_076.jpg Playing with non-dirty, plastic sand

2011_04_081.jpg The butterfly exhibit

2011_04_087.jpg As Aiden would say, “sooo beeutyful!”

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2011_04_101.jpg Uncle Oak, Amisha and Miss O (aka, Sachin’s girlfriend) and the boys

2011_04_104.jpg Bears

2011_04_109.jpg Brushing a big mouth

2011_04_111.jpg It made gushing sounds and scared Evan

2011_04_113.jpg Hitting the monsters

2011_04_115.jpg Oak plays some games too

2011_04_118.jpg Time to….

2011_04_120.jpg Remember Slinky?

2011_04_123.jpg All aboard

2011_04_126.jpg Poor Evan looks so sad

2011_04_127.jpg More trains

2011_04_133.jpg Time to go shopping

2011_04_135.jpg Checkout

2011_04_136.jpg Cashier

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2011_04_142.jpg Don’t overcharge me

2011_04_144.jpg What does that spell?

2011_04_145.jpg Taxicab

2011_04_misc1.jpg Bill Spiotti cut Papa’s hair, Manish’s hair when he was a little boy and is now cutting the twins hair. Spanning 3 generations.

2011_04_156.jpg Grandma reads a goodnight story to the boys

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    One Response to “First trip away…”

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    1. Carolina says:

      It’s nice to see them growing! I miss them… They look like each other a lot now.

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