First trip away…

Shortly after Aiden & Hannah left for the hospital in Boston, Manish and the twins took a trip to Rochester, NY to visit his parents. This was the twins first trip away from home and they did very well! They thoroughly enjoyed their time with Papa, Grandma, “Oak” (Uncle Sachin) & Aunt Amisha. They have grown so much in the past several weeks and now look like 4-yr olds-such big boys! The pics below are an assortment of the boys playing, at the museum, doing things with family and being silly. All in all, it was a great trip!

Aiden and Hannah are still in Boston. Over the past few weeks, Aiden has had a neural MRI, CT Scan, Gastric Emptying Study, Echocardiogram and various other tests. As always, everything is negative and the CT even shows slight overall improvement (in some aspects) in his lungs from his previous chest CT two years ago. While that is good news and rules out the need for lung biopsies at this point, there has still been no progress in addressing the serious health issues that he is continuing to experience. For the past week and a half, Aiden has been trying several new medications as well as re-trying several drugs that were tried previously, prior to his past couple of surgeries. We will meet with Aiden’s GI doctor this week to come up with a longer-term plan, and also plan to begin weaning the narcotic pain medications this week, which will be challenging, given that he is throwing up so much when the drugs wear off.

Thanks for your continued prayers!

Racing cars on their new racetrack

Having a great time harassing Papa

Grandma watches on

Can’t tell who is having more fun here

Amisha and Evan having breakfast

Oak has fun with the boys

Crushed!

Time to get Amisha

Now they turn on eachother

At the museum

Playing with non-dirty, plastic sand

The butterfly exhibit

As Aiden would say, “sooo beeutyful!”

Uncle Oak, Amisha and Miss O (aka, Sachin’s girlfriend) and the boys

Bears

Brushing a big mouth

It made gushing sounds and scared Evan

Hitting the monsters

Oak plays some games too

Time to….

Remember Slinky?

All aboard

Poor Evan looks so sad

More trains

Time to go shopping

Checkout

Cashier

Don’t overcharge me

What does that spell?

Taxicab

Bill Spiotti cut Papa’s hair, Manish’s hair when he was a little boy and is now cutting the twins hair. Spanning 3 generations.

Grandma reads a goodnight story to the boys