Hugs and Kisses, “yes?”

We have taught the boys how to hug and kiss. In the video below, there are several instances where they hug and/or kiss on demand. It is so cute and they seem to enjoy doing it! Now, if we can only get them to do everything else we want! 😉

The newest (favorite) word is “Yes.” The way Ethan says it is so cute, it is as if he is asking a question, “Yes?” When they come down in the morning: “yes?” When the phone rings: “yes?” When it is time to eat: “yes?”

Aiden has started calling Manish, “Dadden.” So, it seems that “daodden” is their version of “dad.” They also call him “didden” and “daddus.” Manish really likes these names!

Ethan and Evan are devising ways to get out of their cribs. Last week around 6:30 AM, we heard a “thump” sound upstairs. A few seconds later, we heard a second “thump.” We thought the twins were banging on the wall but ran up to check. We opened the door and there they were running around – they got out of their cribs within seconds of each other. They were so happy with themselves and giggling as they ran around the room. Since their cribs were only a foot apart, we think they leveraged the other crib and pulled themselves over. Since then, we separated their cribs by at least 2 feet and so far, they have not escaped again yet.

Apparently, Ethan either thinks of himself as a cannibal or thinks of Evan as food (or both). He has learned what a weapon he has in his teeth and has bitten Evan a few times on the arm. We can tell you from personal experience that his bite is worse than his bark! In the video below, Evan puts his fingers in Ethan’s mouth as if to tempt him. Fortunately, Ethan does not get a hold of Evan’s fingers – at least not this time.

Several months ago, we were talking to someone who is a twin and he told us that the boys will have role reversals in their behavior. Apparently, this is very typical among multiples. While it happens less with Aiden, Ethan and Evan seem to trade certain behaviors every couple of months. In recent days, the most obvious is the “bully” factor. In December and January, Evan was a bully and used this size and strength to do whatever he wanted. Whether it was taking toys from his brothers or showing who was boss, he ruled. Lately, Ethan has taken on the “bully” role but instead of using his weight, he utilizes his speed, flexibility and teeth! Maybe in the next round of role reversals, Aiden will be the bully!

We are in the process of working with Children’s Hospital (Boston) to perform some additional testing for Aiden (called manometry) and also to go ahead with the laryngeal cleft surgery for Aiden. Based on our conversation with several physicians, they believe that it would be wise to pursue the surgery and repair the cleft.

Of course, no one can completely predict what the overall impact will be in relation to the vomiting, but our research into similar situations with Type I clefts has indicated that the repair could have huge benefits at very least with relation to the respiratory issues. If the cleft is the primary culprit, then repairing it should help to at least reduce the vomiting (and hopefully) eliminate micro-aspiration into his lungs, eventually allowing us to wean him off the oxygen, helping him eat and sleep better. Thus, there is a potential domino effect. The flip side is that there very well may be something else going on that has not been found and it may have little to no impact on the vomiting. Please keep us in your prayers as we try to work these things out.

Enjoy the video and pictures below.


Ethan, are you tired?

Evan, throw it over here

So big!

His brothers ripped his oxygen cord in two!

So, he enacted revenge by trying to steal food

Ethan, please take your seat

Aiden has been more willing to let us put the spoon (and sometime food) in his mouth

It tastes much better with food on it

A little bear trapped in his cage

Ethan is so cute

The infamous “stethoscope” battle

Dr. Boo to the rescue

Looks like the litte bear is stuck while Ethan looks on

Wrong way, Aiden

Carolina reads the boys a book…they enjoy this very much!

So sweet!


The Grandchildren

A couple weeks ago, Grandma and Grandpa came down for the weekend to see the boys. They had such a good time and even cried when their grandparents left 🙁

Aiden is getting mobile and hobbles all over the place. Unfortunately, because of this, we have to strap his feeding bag on his back and it really slows him down. He gets rather frustrated with it and we remind him that as soon as he starts eating, he won’t have to carry his food on his back.

The twins are doing very well and love life like only 17 month old boys can! Please keep them in your prayers, as they came down with runny noses and seem to have caught something. Naturally, the primary concern is that Aiden will catch whatever they have. It was right around this time last year he was sedated, intubated and in the ICU due to a something he caught.

The images below are over the last couple of weeks.

Grandpa and Ethan together

Ethan is trying to be the favorite grandchild

Of course, he will have to battle Aiden

He knows how cute he is

Especially with his little hat

Here comes trouble (and they are bringing the triplets with them)

Evan, don’t be so impatient!

Evan, don’t you like to swing?

You neither Ethan?

Little Boo Bear in his Eskimo outfit

…and there he goes…

Evan, was the slide fun?

Aiden, I know you love to swing

Love the furry little hood

Ethan, don’t just sit around. Go play!

Grandma will help you

Told you he loved it

The twins love to ‘run away’ and go all over the place

Ethan, what are you waving?

Down the slide

Evan, you don’t look very confident

Don’t crash

Aiden, does Grandpa push so fast that it scares you into praying?

What are you boys up to?

Caught in the act!

Swinging with his cords

Ethan, stop putting those wood chips in your mouth

Grandpa is coming to take it away

So much fun

After a long day, it is time to rest

Ethan, you can’t go in there

Poor Aiden has his feeding bag strapped to his back and it makes it hard to get around

Ethan, what is in there?

The little wonder

He is like a poor little Nomad

Time to get your burp cloths and pacifiers and go upstairs

Here we go…the Amazing Race

Ethan is in the lead, but he seems distracted

Never turn your back on a Boo Bear

Evan is the winner

Of course, neither really won because the prize is lockdown in the cage

A little bear and his pear (I didn’t know that bears ate pears)

Oh, I guess they don’t

Hey, it’s still food so I have to eat it

Ethan, the table is for clothes, not little boys

Aidiana Jones and the Temple of Doom

Aiden, it was a joke. You are not an actual moviestar (at least not yet)

He wanted a classic photograph