Wintertime in Texas

Those frigid, chilly winds have started sweeping down from Canada, through the plains, and straight into the DFW area. Brrrrrrrrrrrrrrrrr! We even had a few snowflakes in Dallas the other day–can you imagine? It felt like we were back in the Northeast. I am extremely thankful to report, however, that it was back up in the 70s again today! I’m all for a tropical Christmas! ;-)

It seems that we are always talking about this, but….the boys are getting SO big! Ethan and Evan had a couple of outfits that were too big for them just a week or two ago, which now fit perfectly or are getting tight. Ethan is eating like a little garbage disposal, and has taken over the title of “chow hound” in our house! (You can see him in the video below carrying around a jar of pretzel sticks – almost as big as he is – and trying to get them open!)

Last Thursday, we were finally able to have the procedure done to replace Aiden’s g-tube with a G-J tube. It was a very painful procedure for Aiden, made even more difficult by having to work with some recalcitrant doctors. Unfortunately, the G-J tube is not working as expected. We knew that Aiden would continue to vomit constantly, but it was supposed to lessen the volume of liquid that was coming up every time (as it had previously when he was fed through the ND tube). Given the nature of feeding into the intestines, he is not supposed to be able to throw up milk. Instead, it seems to have made it even worse in some ways. While he is not throwing up as much milk, he continues to throw up not only milk but also large amounts of bile and dried blood. As a consequence, he is also requiring more oxygen.

Another urgent prayer request: for months we have been attempting to find a good local GI doctor for Aiden. We desparately need someone who will provide continuity of care, be available when Aiden needs to have procedures like this done, and be willing to work with the doctors at the Center for Aerodigestive Disorders (CAD) in Boston. The doctors in Boston have been wonderful, but we really need a local point of contact as well. Sadly, we have experienced numerous and strange road blocks and challenges. One doctor had been highly recommended to us, and after jumping through all kinds of hoops to try and get Aiden in to see him, he came back this week and told us that he would not see Aiden. As you can imagine, we are completely stunned and don’t know what to do next. However, we would rather know now before we start down that road. As we have learned the hard way throughout Aiden’s long illness, it is so important to have the right doctors. We are praying that the Lord will direct us to the right GI doctor for Aiden very soon. Please pray with us!

PS: lots of pics below for those of you who asked!

 

Aiden is in hiding

Discovered!

Peek-a-boo is tiring for a little boy!

Staying warm

Ethan is loving his food these days

Evan is Small, Mighty, and Handsome (with very big brown eyes)

The Little Stinker

Ethan believes in doing his own stunts

What stunt are you plotting now, Ethan?

What a face!

Aiden is already into technology (he thinks he should have the camera)

Evan holds his bottle with just the one hand

Snuggle time with mommy

Ethan can’t get enough!

Aiden has all the toys to himself while the twins are taking their afternoon nap

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