On Friday afternoon, we heard back from the folks at the Boston Children’s Center for Aero-Digestive Disorders (CADD). They have been so kind and very responsive. They said that they would be unable to provide us with a second opinion on the laryngeal cleft issue based solely on the images that were taken during the laryngoscopy/rigid bronchoscopy. The only way they can verify whether or not Aiden may have a laryngeal cleft would be for the doctor who is the director of CADD to perform the procedure and actually touch and probe the larynx for himself. Given the situation, we expressed our concerns about taking Aiden to Boston solely to re-perform the same tests that have already been performed and no hope of any answers. We do not want to take him all the way and put him through these invasive tests again just for the sake of going somewhere else — but by the same token, if they can do anything at all to help him, we will go wherever we need to go. This also is a major prayer request as the past 8 mos. have also been hard on Ethan and Evan, and we would need to find someone to care for them during that period if we were to take Aiden to Boston for testing.
They understood our concerns, and when we spoke with them again yesterday afternoon, said that they will be presenting Aiden’s case at two different meetings today to see if there is anything else that they can do or suggest that we should explore. They will present it when the group of inter-disciplinary CADD physicians (GI, pulmonology, radiology, ENT, etc.) meet this morning and will also present it at their CADD conference later this afternoon, which is open to all physicians at the hospital and has a much wider attendance. Right now, this is our only remaining option. We do not know where else to turn or what else we should look at. Please pray that God will send the right doctors to these meetings and that if He wills, something will come out of this to help Aiden, and that He will give us clear direction and wisdom as to what we should do.
