Aiden and Hannah finally came back home yesterday afternoon after 3 weeks at Boston Children’s Hospital. Aiden’s g-tube surgery went well on Friday, and although he did have a bad reaction to the anesthesia and a rough couple of days afterwards, he is now recovering and healing well. He continues to vomit multiple times a day, losing good portions of his feeds now that he is again being fed into his stomach. Although we have ruled out a number of possibilities, we still do not have the answers we had hoped to find.
There is a possibility that we may be able to try a special medication for him called Cisapride, which is only available through a limited access program in Boston. It is possible that this medication may help minimize some of his symptoms (we will not know unless we try it for approx. 2 mos.). We will not know if he is approved for it for several weeks, and then we would have to return to Boston to administer it. That is the only option that we have for possible treatment at this point, and of course, there is no guarantee that it will work for him. Please pray that Aiden will be able to keep more of his food down and that the persistent vomiting and increased volume will not cause any major respiratory issues as it has in the past.
We posted several images of Aiden’s journey to Boston as well as some of Ethan and Evan below.
Also, we are actively looking for a new babysitter/mother’s helper now that Dana has gone back to college. Please pray that we will find a good replacement ASAP (they will have big shoes to fill as Dana has been wonderful)!
The resp. therapist and Aiden had a date 30,000 feet in the air
People came to entertain Aiden with their music
Aiden and all his EEG probes (he looks like something from Star Wars)
What a colorful pony tail!
The little Sheik with his turban
Grandma came all the way from NY to play
Grandpa was there too!
Meanwhile, the twins battle over the phone (their favorite toy)
Here comes Evan
He loves to chew on everything
Ethan, what is up there?
And now its time to relax
Oh no, why the crying?
Because he wants to get out of ‘jail’
Evan looks ferocious!
Ethan invades the pantry (he decided it was time for a snack!)
Boo has such big eyes
Ethan is simply adorable…and the shoe is very tasty!
Learning to fetch
Evan looks pensive
Ethan peruses the local stocks
So happy to hear that Aiden & Mommy are coming home!
Evan is learning to feed himself…sort of
He is so happy to be back!
Evan curls up on the couch
Dana has been such a wonderful babysitter this summer….we will miss her as she goes back to college
One of Aiden’s many new faces
Such a happy little baby!